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Data-steward Position at Radboud UMC, Netherlands 2022

The Netherlands

Data-steward Position is available for  MSc or PhD degree candidates in a relevant discipline (public health, (medical) informatics, data science, biology, bioinformatics, computer science, artificial intelligence, medical informatics) at Radboud UMC, Netherlands 2022

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General Info

Position: Data Steward
No. of Positions: 1
Research Field: , , , , , ,
Deadline to Apply: Expired
Joining Date: ASAP
Contract Period: Subject to Norms
Salary: min € 2986 - max € 4707 gross per month

Centre for Molecular and Biomolecular Informatics (CMBI)

Radboud university medical center, the Netherlands


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Qualification Details

In addition you possess the profile below:

  • MSc or PhD in a relevant discipline (public health, (medical) informatics, data science, biology, bioinformatics, computer science, artificial intelligence, medical informatics).
  • You endorse the FAIR principles and Open Science.
  • Experience with(meta)data modelling and knowledge of formal data representations and frameworks (e.g FHIR, ODHISI, ODL, SIO, DCAT).
  • Ontology, Theasaurus, Semantic web / linked data skills preferred (e.g. OWL, RDF, ShEx, RML).
  • Programming skills in a relevant language (python, Java, C++) is a plus.
  • Ability to work in multidisciplinary teams.
  • Excellent writing and verbal communication in English (Dutch is a plus).
  • Ambition to participate/present in (inter)national conferences/congresses, academic writing skills.

Candidates with BSc of MSc degree and suitable experience are also welcome to apply.

Responsibilities/Job Description

As the number of rare disease patients is small by definition, there is a pressing need for the joint analysis of patient data on natural disease history, genetic makeup, disease modifiers and treatment outcomes. However, the available data is fragmented across different care providers, registries, and countries, and cannot be used to their full potential because data get lost, are not associated with descriptive metadata, or miss essential details on the way they are produced. We took important first steps in the development of interoperable patient registries, based on the FAIR principles, facilitating joint analysis of patient data from multiple registries.We are now looking for an enthusiastic and ambitious data steward, who will support clinicians and researchers to increase the FAIRness of patient data, such as clinician and patient reported outcomes and health questionnaire data. This will unlock the data for use in clinical patient management, research and improvement in quality of care. The data steward will develop data models and tools to capture FAIR data at the source (i.e. where the data are generated or analysed) and facilitate the publication of research data in FAIR Data Points and registries. A specific focus will be on the joint analysis of data from clinical registries and patient-reported outcomes. The data steward will work in the context of the European Joint Programme on Rare Diseases and closely interact with data stewards appointed on other projects (X-omicsHealth-RI) with highly similar goals.Tasks and responsibilities

  • Design (meta)data models for rare disease data based on existing ontologies and semantic standards.
  • Engaging with clinicians and researchers, and supporting and training them in FAIR data management and the data FAIRification process, e.g. through participation in Bring-Your-Own-Data workshops.
  • Co-develop software, tooling, services, and Standard Operating Procedures (SOPs) and policies around the FAIR capture and publication of data and metadata.
  • Participation in national and international data stewardship discussion groups and coordination and competence building initiatives, such as the rare disease linked data and ontology task force and the data steward interest group run by the Dutch Techcentre for the Life Sciences.

What we offer

  • Diverse and multicultural work environment very open to international colleagues.
  • Flexible / Hybrid work possibilities.
  • Opportunities to career development and specialisation / learning.
  • Access to great network of experts in FAIR principles.
  • Empowerment and independence at your own responsibilities.

How to Apply?

Application Method: Online Application
Ref. No.: -

Application Procedure

We would like to receive your application before 11 May 2022. We will then contact you shortly.

What else can you expect?

When you begin employment, we will request a certificate of conduct (VOG) and, depending on the position, you may be screened. You do not need to do anything for this; we will inform you later.  Radboud university medical center is an employer that welcomes everyone. Every colleague brings valuable experience, expertise, and creativity. We believe in the benefits of a diverse and inclusive organization. #weareradboudumc

Read more about our application procedure or take a look at the frequently asked questions.  We are recruiting for this vacancy ourselves. We only accept applications directly from the applicants themselves, but intermediaries are welcome to share our vacancies in their networks.​

About the Department/Section/Group

The Centre for Molecular and Biomolecular Informatics (CMBI) develops bioinformatics approaches that contribute to the understanding of disease mechanisms, personalized therapies and interventions, and a learning health care system. The CMBI is committed to the reusability of its data, tools, and services, and puts the FAIR (Findable, Accessible, Interpretable, Reusable) data principles into action.

The Department of Medical Imaging is the world’s 4th best university in Radiology. Prof. Schultze Kool plays a leading role in the European Reference Network on Rare Multisystemic Vascular Diseases (VASCERN) and is a recognized expert in the multidisciplinary treatment of vascular malformations. The Radboud Technology Center for Data Stewardship (RTC-DS) develops and supports various ICT solutions for research data management. Its mission is to supply researchers with data management tools to both facilitate groundbreaking research and simplify the compliance with laws, regulations and standards (like FAIR). At the heart of their suite of tools is the internationally acclaimed Digital Research Environment (DRE), a comprehensive and flexible analysis environment.

About the Employer:

Note or Other details

Working at Radboud university medical center means that you are ahead of the curve and working together on the healthcare of the future. And there is more. Our secondary terms of employment are impressive. These are fully tailored to you thanks to our Employment Conditions Selection Model. At Radboud university medical center, you will be given trust, and you will take the responsibility to handle everything together. We provide annual courses, both professional and personal.

  • In addition to your monthly salary and an annual vacation allowance of 8%, you will receive an end-of-year bonus of 8.3%.
  • If you work irregular hours, you will receive an allowance.
  • As a full-time employee (36 hours per week), you are entitled to approximately 168 vacation hours (over 23 days) per year.
  • Radboud university medical center pays 70% of the pension premium. You pay the rest of the premium with your gross salary.
  • You get a discount on health insurance as well: you can take advantage of two group health insurance plans. UMC Zorgverzekering and CZ collectief.

In addition to our terms of employment, we also offer employees various other attractive facilities, such as childcare and sports facilities. Want to learn more? Take a look at the CAO UMC.

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Contact details

All additional information about the vacancy can be obtained from Prof. dr. Peter-Bram 't Hoen, Professor of Bioinformatics and Head Centre for Molecular and Biomolecular Informatics. Use the Apply button to submit your application.

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